HELPFUL RESOURCES

Information to help navigate life after a diagnosis of Parkinson’s or Lewy Body Dementia

These are all organizations, resources and medical specialists that I found helpful during this process. Not everyone will find solace from each of these recommendations, but I hope you will find what works for you.

National Organizations

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The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today. Watch our video to find out how we will get to a cure.

https://www.michaeljfox.org

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Through outreach, education and research, we support those affected by Lewy body dementias, their families and caregivers. We are dedicated to raising awareness and promoting scientific advances.

https://www.lbda.org/

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Evidence-based speech, physical and occupational therapies for people with Parkinson’s and other conditions

https://www.lsvtglobal.com/

Books

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I wish I had known about this book years ago when my dear husband Richard was just starting to exhibit the signs of Lewy body dementia. At the time, I didn’t even know what Lewy body dementia was. I could have learned faster and been smarter with less anxiety of the unknown of what was happening and would happen. This book is sobering, especially for those early in their journey. But don’t let that stop you from reading it cover to cover.  It is written by Helen Buell Whitworth and James Whitworth.

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Managing Cognitive Issues in Parkinson’s & Lewy Body Dementia: Alternative Therapy Suggestions is the second book by Helen Buell Whitworth and James Whitworth.  It is written in the same well-informed and easy-to-read style as A Caregiver’s Guide to Lewy Body Dementia. Building on the incredible information in their first book, I learned even more about how to proactively prepare for your loved one’s future along with your own.  As one important example, knowing how some prescription drugs have dramatic and even permanent side effects on those with Lewy body dementia is mission-critical information that I wish I had known years ago. 

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This is a memoir with lots of practical advice, especially in the final chapters.  It is written by Pat Snyder.  I especially like Pat’s neurologist, Dr. Kaufer’s goal of preserving personhood.  It sounds so simple, but it’s not.

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Arizona Resources

Alternative Resources

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With the introduction of this new healing modality I found myself being asked to travel to different locations to work with people all over the map. I choose to follow this calling and have been working this past year since leaving Tucson with people from all over the world – remotely.

http://www.lifehealer.org/

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With the introduction of this new healing modality I found myself being asked to travel to different locations to work with people all over the map. I choose to follow this calling and have been working this past year since leaving Tucson with people from all over the world – remotely.

http://staciwells.com

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My Divine purpose is to Clear/Release the Non-Divine Energy off the Planet. I am very passionate about my Divine Purpose in life and have vowed to Mother God -Sophia and Father God – Abba that my service is with them.

https://www.divineenergymanagement.com/cate-brandt