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MJFF’s new guide: Navigating Cognitive Changes in Parkinson’s
The Michael J. Fox Foundation's new guide on Navigating Cognitive Changes in Parkinson's describes how thinking and memory can change with PD, offers tips to potentially prevent and also ease symptoms, and provides strategies to connect with loved ones and care teams...
read moreSmelling Parkinson’s Disease
This fascinating video is about a woman who can smell disease, and her super smelling ability is leading researchers to discover what molecules are prevalent in Parkinson's Disease. It definitely gives hope for the future....
read moreThe Science of Lewy Body Dementia explained in less than 5 minutes
This is video does a great job of explaining the Science of Lewy body dementia in less than 5 minutes. Very well done and worth watching. https://youtu.be/cIHTiY_68JI https://youtu.be/cIHTiY_68JI NOTE: You will find my book Parkinson's: A Love Story with Dementia for...
read moreAn excellent resource: Managing Cognitive Issues in Parkinson’s & Lewy Body Dementia
Managing Cognitive Issues in Parkinson's & Lewy Body Dementia: Alternative Therapy Suggestions is the second book by Helen Buell Whitworth and James Whitworth. It is written in the same well-informed and easy-to-read style as A Caregiver’s Guide to Lewy Body...
read moreStudy finds Parkinson’s creates a $52 billion economic burden in the US alone
The Michael J. Fox Foundation (MJFF), with Parkinson’s Foundation, AbbVie Inc., ACADIA Pharmaceuticals, Acorda Therapeutics, Adamas Pharmaceuticals, and Biogen Inc., along with American Parkinson Disease Association and The Parkinson Alliance commissioned a new study...
read moreUse Sticker Charts to keep track of important information
To keep track of Richard’s most important activities and accomplishments of the day, we use a weekly sticker chart. Dr. Pam, Richard’s psychic healer, had this idea, and we have expanded upon it. It’s a great way for me to keep tabs on how each day and night are...
read moreBasketball and Muscle Memory
Richard was a fine basketball player. He started with the varsity team when he was a freshman in high school, and it was his passion. His friend George put it this way: “Richard did things that no one else did. Hit the open man, dribble through any defense, and hand...
read moreAn Excellent Resource: Treasures in the Darkness: Extending the Early Stage of Lewy Body Dementia, Alzheimer’s, and Parkinson’s Disease
I highly recommend Treasures in the Darkness: Extending the Early Stage of Lewy Body Dementia, Alzheimer’s, and Parkinson’s Disease by Pat Snyder. This is a memoir with lots of practical advice, especially in the final chapters. I especially like Pat’s neurologist,...
read moreThe Roly-Poly Visitor
28 April 2016 Several friends and even doctors have been saying that Richard should have a companion dog. My response has always been the same: hell no. I hate dogs. OK, hate is a strong word. How about despise? Let’s just say I don’t like dogs. In general, Richard...
read moreComing Home
December 2015 I live in a condo on the second floor, and the woman below me died of Parkinson’s back in July. Mary lived there with live-in caregivers. I could tell she was an elegant woman with style. But it’s hard to be elegant and with style when you have advanced...
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