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We Tried Everything
When traditional medicine let us down, we did not give up there. We tried everything. Everything has helped, but nothing has been a cure. That would have been a dream. Here’s the list of the things we have tried: Acupuncture Cognitive therapy Counseling CBD and...
Managing the Change that Nobody Wants
10 October 2016 Article for the Michael J. Fox Foundation and my business blog at Avasbutler.com I’m an organizational development consultant who specializes in helping business leaders achieve transformational change; it’s my life’s calling. But not all change is...
The Last Year
19 April 2016 Richard, today you were standing in the hallway, and you looked like my husband, the old you. That was really wild and beautiful to see, if only for a minute. 6 July 2016 Today is our twenty-fifth wedding anniversary. What a crazy ride. I haven’t written...
Be proactive when your loved one is in assisted living
When my dear husband Richard was in assisted living due to his Parkinson's and Lewy-body dementia, I learned first hand the importance of being proactive in the quality of his care. My attention to details and follow up to ensure expectations were met made a big...
New Dementia Tools from Compassion and Choices
Compassion and Choices https://compassionandchoices.org now offers two excellent and customizable online dementia tools. The Dementia Values and Priorities Online Tool allows users to create a Dementia Healthcare Directive to add to a standard advance directive. This...
What We Can Learn about Lewy-Body Dementia from the Life of Robin Williams
Robin Willams brought a wider understanding of Lewy-body dementia to the world. His wife, Susan Schneider Williams has become an advocate for Lewy-body dementia. Like Susan, I work to find meaning from the experiences my husband Richard and I had. I encourage you...
Mission Critical Meetings: 81 Practical Facilitation Techniques
On Friday, I had the pleasure of participating in a Parkinson's and Movement Disorder Alliance (PMD Alliance) online event on facilitation techniques for support group leaders. Here's the link to their website. They are an excellent resource....
Dementia for Dessert
Sugar will kill my husband. Not directly, as with a gun, but as a malicious and seductive accomplice. Alzheimer’s is called type 3 diabetes, after all. And sugar sure as hell isn’t helping our situation. Richard loves his sweets and has done so since he was a little...
5 Steps for First Time Family Caregivers
Becoming a family caregiver can be daunting to say the least. There is so much to learn - if you want to learn or not. Your life has changed and that has both blessings and concerns. This short article offers practical advise....
New Therapies Help Patients With Dementia Cope With Depression
Many patients with cognitive impairment have anxiety or depression, but standard treatments are difficult for people with memory issues. This excellent New York Times article describes new therapies to help patients with dementia cope with depression. I could have...