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Use Sticker Charts to keep track of important information

by Ava Butler | Jun 6, 2019 | Assisted living, Dementia, Lewy body dementia, Parkinson's

To keep track of Richard’s most important activities and accomplishments of the day, we use a weekly sticker chart. Dr. Pam, Richard’s psychic healer, had this idea, and we have expanded upon it. It’s a great way for me to keep tabs on how each day and night are...

Basketball and Muscle Memory

by Ava Butler | May 25, 2019 | Dementia, Lewy body dementia, Parkinson's

Richard was a fine basketball player. He started with the varsity team when he was a freshman in high school, and it was his passion. His friend George put it this way: “Richard did things that no one else did. Hit the open man, dribble through any defense, and hand...

An Excellent Resource: Treasures in the Darkness: Extending the Early Stage of Lewy Body Dementia, Alzheimer’s, and Parkinson’s Disease

by Ava Butler | May 20, 2019 | Dementia, Lewy body dementia, Parkinson's

I highly recommend Treasures in the Darkness: Extending the Early Stage of Lewy Body Dementia, Alzheimer’s, and Parkinson’s Disease by Pat Snyder.  This is a memoir with lots of practical advice, especially in the final chapters.  I especially like Pat’s neurologist,...

The Roly-Poly Visitor

by Ava Butler | Apr 27, 2019 | Companion animals, Dementia, Lewy body dementia, Parkinson's

28 April 2016 Several friends and even doctors have been saying that Richard should have a companion dog. My response has always been the same: hell no. I hate dogs. OK, hate is a strong word. How about despise? Let’s just say I don’t like dogs. In general, Richard...

Coming Home

by Ava Butler | Apr 11, 2019 | Dementia, Lewy body dementia, Lewy body dementia hallucinations, Parkinson's

December 2015 I live in a condo on the second floor, and the woman below me died of Parkinson’s back in July. Mary lived there with live-in caregivers. I could tell she was an elegant woman with style. But it’s hard to be elegant and with style when you have advanced...

Letter from long time friend, Mike

by Ava Butler | Mar 18, 2019 | Dementia, Lewy body dementia, Parkinson's, Uncategorized

Richard’s long time friend, Mike wrote this letter after a trip to see us while Richard was in assisted living.  Good friends meant so much and stuck with us every step of the way. 19 August 2015 Dear Richard: It was really great to see you last week. I enjoyed...
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