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Robin’s Wish: a new documentary about Robin Williams and Lewy Body Dementia

by Ava Butler | Sep 6, 2020 | Dementia, Depression, Lewy body dementia, Lewy body dementia hallucinations, Parkinson's, Robin Williams

I highly recommend the new documentary about Robin Williams and Lewy body dementia.  It alternates between paying tribute to Robin and shedding light on Lewy body dementia, which was diagnosed in him after his death. I wish my dear husband, Richard and I had this...

Podcast: When Life Gives You Parkinson’s

by Ava Butler | Jun 25, 2020 | Caregiving, Lewy body dementia, Lewy body dementia hallucinations, Parkinson's

I had the pleasure of meeting Larry Gifford at the MJFF’s Parkinson’s IQ + You event in Phoenix last January.  He was the moderator for the day, and interviewed me as part of a panel called “If I Knew Then What I Know Now.” Larry does a weekly podcast...

It’s Different to Grieve the Death of a Loved One When They Have Been Sick for a Long Time

by Ava Butler | Jun 15, 2020 | Caregiving, Dementia, Grieving, Lewy body dementia, Parkinson's

27 June 2017 Written for OptionB.org  https://optionb.org/ It’s different to grieve the death of a loved one when they have been sick for a long time. It isn’t as shocking, and it includes a sense of relief that the suffering is over. But I’m not sure that it’s...

Grieving during the pandemic

by Ava Butler | May 13, 2020 | Assisted living, Caregiving, Covid-19, Dementia, Depression, Grief, Lewy body dementia, Parkinson's

Grieving is difficult at any time, and especially difficult now.  We grieve for many reasons, the loss of life, of income, and the loss of hugs and kisses to name a few. We miss our loved ones in assisted living, and our friends and family across the world or across...

Hospital Patients with Dementia Need their Caregivers

by Ava Butler | May 5, 2020 | Caregiving, Covid-19, Dementia, Lewy body dementia, Lewy body dementia hallucinations, Parkinson's

Anyone who has had a loved one with dementia in the hospital knows how important it is for you to be there to help them through and avoid complications. This article provides practical tips on how to support your loved ones in the best way you can during Covid-19...
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