26 December 2014

My best friend and love for 23 years has Parkinson’s disease and dementia

It seems long ago when we were happy and healthy

Full of joy and adventure

Blessed with a life of travel and good fortune

Many were envious

The perfect couple

Smart, good looking and so in love

Now I’m your caregiver

Worried about bowel movements and falling and gluten free diets

And making appointments, hoping without a scene or backing out at the last minute

We tried everything to get you back to health

Or at least to slow the vicious decline

Friends and strangers tell me how strong I am

But I don’t feel strong

I feel exhausted and sad and angry and alone

Richard moves to memory care next week

High end lodge in the desert like place

With a view of the mountain we love

Maybe he’ll thrive there or simply wait to die

Tears of despair, prayers for a miracle and armies of professionals don’t change the harsh reality

I’ve lost the man I married somewhere along the way slowly and day by day. At first, I didn’t notice

Sometimes he’s still here. A tender kiss, a quiet thank you and I love you

I want my husband back, but he can’t make it

They say that there is a reason for everything but it’s probably just a bunch of crap to make those who suffer feel better


You will find my book Parkinson’s: A Love Story with Dementia for Dessert on Amazon.  https://www.amazon.com/Parkinsons-Love-Story-Dementia-Dessert-ebook/dp/B07K4RLC2D/ref=sr_1_1?ie=UTF8&qid=1542135434&sr=8-1&keywords=Parkinson%27s+A+Love+Story+with+Dementia+for+Dessert&dpID=41xS3edPH0L&preST=_SY445_QL70_&dpSrc=srch  Your feedback and reviews are most welcome.

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