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Moving to Assisted Living

by Ava Butler | Feb 10, 2019 | Assisted living, Dementia, Lewy body dementia, Parkinson's

January 2015 I discovered there are people who specialize in finding care facilities for your loved ones—like a real estate person for those with special needs. This is a fantastic notion and a tremendous help. Margaret Roberts came to our home to interview us and...

I Want My Husband Back, But He Can’t Make It

by Ava Butler | Jan 31, 2019 | Dementia, Lewy body dementia, Parkinson's

26 December 2014 My best friend and love for 23 years has Parkinson’s disease and dementia It seems long ago when we were happy and healthy Full of joy and adventure Blessed with a life of travel and good fortune Many were envious The perfect couple Smart, good...

Peeing Our Way to Assisted Living

by Ava Butler | Jan 27, 2019 | Dementia, Lewy body dementia, Parkinson's

9 December 2014 Things are getting worse. Richard was incontinent at night again and can’t understand that he needs to use the toilet not the floor. Damn you, Parkinson’s and dementia. We’ve had several more accidents where he has peed the floor, including three times...

What Richard Sees: Insight into Hallucinations Associated with Lewy Body Dementia

by Ava Butler | Jan 10, 2019 | Dementia, Lewy body dementia, Lewy body dementia hallucinations, Parkinson's

Persistent and recurring visual hallucinations are often an early symptom of Lewy Body Dementia – LBD. This was true for my husband, Richard. Not all LBD hallucinations are fear based, but Richard’s were. His ability to communicate clearly has been impacted, and...

Progress in the Wrong Direction

by Ava Butler | Jan 2, 2019 | Dementia, Lewy body dementia, Parkinson's

20 March 2013 It’s the first day of spring already. Richard has been having a bad week, feeling poorly, and having difficulty accomplishing tasks. I really need to write in my journal more. This could be a good record of his situation. We’re going to Dr. Ramsey, a...

Modern Medicine Failed Us and without Emotional Intelligence

by Ava Butler | Dec 30, 2018 | Dementia, Lewy body dementia, Parkinson's

April 2013 Richard and I were looking for so many ways to fight the inevitable—anything we could find to help him with his Parkinson’s and dementia. We went to the University of Arizona’s neurology department for insights. It’s a teaching hospital, so there were...
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