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An excellent resource: The Caregiver’s Guide to Lewy Body Dementia

by Ava Butler | Mar 4, 2019 | Assisted living, Dementia, Lewy body dementia, Lewy body dementia hallucinations, Parkinson's

I wish I had known about this book years ago when my dear husband Richard was just starting to exhibit the signs of Lewy body dementia. At the time, I didn’t even know what Lewy body dementia was. I could have learned faster and been smarter with less anxiety of...

Twelve Ways My Dear Husband’s Dementia Taught Me to Be a Better Consultant

by Ava Butler | Feb 15, 2019 | Dementia, Lewy body dementia, Parkinson's

June 21, 2015 Article for the MJFF (Michael J. Fox Foundation) and my blog http://www.avasbutler.com I am an organizational development consultant specializing in transformational change. I’m also the wife of my dear Richard. We’ve been happily married for almost 24...

Moving to Assisted Living

by Ava Butler | Feb 10, 2019 | Assisted living, Dementia, Lewy body dementia, Parkinson's

January 2015 I discovered there are people who specialize in finding care facilities for your loved ones—like a real estate person for those with special needs. This is a fantastic notion and a tremendous help. Margaret Roberts came to our home to interview us and...

I Want My Husband Back, But He Can’t Make It

by Ava Butler | Jan 31, 2019 | Dementia, Lewy body dementia, Parkinson's

26 December 2014 My best friend and love for 23 years has Parkinson’s disease and dementia It seems long ago when we were happy and healthy Full of joy and adventure Blessed with a life of travel and good fortune Many were envious The perfect couple Smart, good...

Peeing Our Way to Assisted Living

by Ava Butler | Jan 27, 2019 | Dementia, Lewy body dementia, Parkinson's

9 December 2014 Things are getting worse. Richard was incontinent at night again and can’t understand that he needs to use the toilet not the floor. Damn you, Parkinson’s and dementia. We’ve had several more accidents where he has peed the floor, including three times...

What Richard Sees: Insight into Hallucinations Associated with Lewy Body Dementia

by Ava Butler | Jan 10, 2019 | Dementia, Lewy body dementia, Lewy body dementia hallucinations, Parkinson's

Persistent and recurring visual hallucinations are often an early symptom of Lewy Body Dementia – LBD. This was true for my husband, Richard. Not all LBD hallucinations are fear based, but Richard’s were. His ability to communicate clearly has been impacted, and...
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