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New Dementia Tools from Compassion and Choices
Compassion and Choices https://compassionandchoices.org now offers two excellent and customizable online dementia tools. The Dementia Values and Priorities Online Tool allows users to create a Dementia Healthcare Directive to add to a standard advance directive. This...
What We Can Learn about Lewy-Body Dementia from the Life of Robin Williams
Robin Willams brought a wider understanding of Lewy-body dementia to the world. His wife, Susan Schneider Williams has become an advocate for Lewy-body dementia. Like Susan, I work to find meaning from the experiences my husband Richard and I had. I encourage you...
Mission Critical Meetings: 81 Practical Facilitation Techniques
On Friday, I had the pleasure of participating in a Parkinson's and Movement Disorder Alliance (PMD Alliance) online event on facilitation techniques for support group leaders. Here's the link to their website. They are an excellent resource....
Dementia for Dessert
Sugar will kill my husband. Not directly, as with a gun, but as a malicious and seductive accomplice. Alzheimer’s is called type 3 diabetes, after all. And sugar sure as hell isn’t helping our situation. Richard loves his sweets and has done so since he was a little...
5 Steps for First Time Family Caregivers
Becoming a family caregiver can be daunting to say the least. There is so much to learn - if you want to learn or not. Your life has changed and that has both blessings and concerns. This short article offers practical advise....
New Therapies Help Patients With Dementia Cope With Depression
Many patients with cognitive impairment have anxiety or depression, but standard treatments are difficult for people with memory issues. This excellent New York Times article describes new therapies to help patients with dementia cope with depression. I could have...
8 Facts You Should Know About Parkinson’s Disease and Psychosis
Delusions and hallucinations are common symptoms of Parkinson’s disease, but they’re often overlooked or ignored — both by people with the condition and their caregivers. Celebrities like Muhammad Ali and Michael J. Fox have helped thrust Parkinson’s disease into the...
Two new articles through the Lewy Body Resource Center – keep learning!
I found these two articles through the Lewy Body Resource Center to be both interesting and helpful. We all need to keep learning!...
MJFF’s new guide: Navigating Cognitive Changes in Parkinson’s
The Michael J. Fox Foundation's new guide on Navigating Cognitive Changes in Parkinson's describes how thinking and memory can change with PD, offers tips to potentially prevent and also ease symptoms, and provides strategies to connect with loved ones and care teams...
Smelling Parkinson’s Disease
This fascinating video is about a woman who can smell disease, and her super smelling ability is leading researchers to discover what molecules are prevalent in Parkinson's Disease. It definitely gives hope for the future....